Domain Informations
Worldduchenneday.org lookup results from http://whois.registrar.eu server:
- Domain created: 2014-08-05T08:56:49Z
- Domain updated: 2024-09-19T08:56:53Z
- Domain expires: 2025-08-05T08:56:49Z 0 Years, 261 Days left
- Website age: 10 Years, 103 Days
- Registrar Domain ID: 432d6e598a7a4227830e22cd510f8860-LROR
- Registrar Url: http://www.openprovider.com
- Registrar WHOIS Server: http://whois.registrar.eu
- Registrar Abuse Contact Email: [email protected]
- Registrar Abuse Contact Phone: +31.104482297
- Name server:
- elma.ns.cloudflare.com
- mario.ns.cloudflare.com
Network
- inetnum : 172.64.0.0 - 172.71.255.255
- name : CLOUDFLARENET
- handle : NET-172-64-0-0-1
- status : Direct Allocation
- created : 2010-07-09
- changed : 2021-07-01
- desc : All Cloudflare abuse reporting can be done via https://www.cloudflare.com/abuse,Geofeed: https://api.cloudflare.com/local-ip-ranges.csv
Owner
- organization : Cloudflare, Inc.
- handle : CLOUD14
- address : Array,San Francisco,CA,94107,US
Abuse
- handle : ABUSE2916-ARIN
- name : Abuse
- phone : +1-650-319-8930
- email : [email protected]
Technical support
- handle : ADMIN2521-ARIN
- name : Admin
- phone : +1-650-319-8930
- email : [email protected]
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Host Informations
- IP address: 172.67.198.28
- Location: United States
- Latitude: 37.751
- Longitude: -97.822
- Timezone: America/Chicago
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Websites Listing
We found Websites Listing below when search with worldduchenneday.org on Search Engine
Home • World Duchenne
2021-03-16 · Welcome to WDO. We’ve been connecting the Duchenne and Becker muscular dystrophy community since 2005, but we’re more than this. Partner with WDO and you’ll automatically join the global family to improve treatment, quality of life and long-term outlook for all people affected by Duchenne and Becker muscular dystrophy.
Worldduchenne.orgWorld Duchenne Awareness Day
In 2013, a group of dreamers from World Duchenne Organization began to imagine a day dedicated to raising awareness about Duchenne and Becker muscular dystrophy. A day on which, all over the world, a symbolic gesture would be made that would be transported everywhere. The date, 7 September (7/9) is a reference to the 79 exons of the Duchenne gene.
Worldduchenne.orgWorld Duchenne Awareness Day - Jett Foundation
September 7, 2022. For the past 5 years, Jett Foundation has hosted this annual event of celebration and remembrance in the Boston area, the epicenter for rare disease research. In recognition of this annual worldwide day dedicated to Duchenne muscular dystrophy, we bring local patients and families, Duchenne experts, and industry partners ...
Jettfoundation.orgWorld Duchenne Day | CureDuchenne
World Duchenne Day September 7, 2021 Shared Action is Shared Power! ...
Dev.cureduchenne.orgWORLD DUCHENNE AWARENESS DAY - September 7, …
September 7, 2022. World Duchenne Awareness Day is observed every year on September 7. An initiative by the World Duchenne Organization, this day aims to raise awareness about Duchenne and Becker Muscular Dystrophy. Caused by mutations in the dystrophin genes, these are devastating genetic conditions that produce symptoms such as learning ...
Nationaltoday.comWorld Duchenne Awareness Day: September 7, 2021
2021-05-13 · May 13, 2021. Advocacy, Defeat Duchenne Canada News. September 7 is World Duchenne Awareness Day. On this day, Defeat Duchenne Canada joins forces with organizations from around the world to raise awareness for Duchenne and Becker Muscular Dystrophy (DMD/BMD). Every year, the World Duchenne Organization sets a special theme …
Defeatduchenne.caWorld Duchenne Awareness Day
World Duchenne Awareness Day falls on the 7th September each year. On this day Action Duchenne joins the international Duchenne community to raise the profile and awareness of the condition. In 2022 we want our supporters to join us and get involved – no matter how big or small. Early years providers, schools, colleges, sports clubs, music ...
Actionduchenne.orgWorld Duchenne Organization - Facebook
World Duchenne Organization, Veenendaal. 14,213 likes · 21 talking about this. Help raise awareness for all people living with Duchenne and Becker who urgently need good medical care. 7 September -...
Facebook.comTraduction rendue possible par l’AFM ... - worldduchenneday.org
WORLDDUCHENNEDAY.ORG Journée Mondiale de Sensibilisation à la Myopathie de Duchenne Pack d’information #WDAD2022 Traduction rendue possible par l’AFM-Téléthon. WORLDDUCHENNEDAY.ORG leur vie. Avec les protocoles de soins actuels, les personnes atteintes de la maladie de Duchenne peuvent vivre jusqu’à 30 ans et plus. QUE PUIS-JE …
Worldduchenneday.orgDÍA MUNDIAL DE LA CONCIENTIZACIÓN SOBRE DUCHENNE
WORLDDUCHENNEDAY.ORG necesitan a lo largo de su vida de la atención de muchos especialistas. Con los estándares actuales de cuidado, las personas con Duchenne pueden vivir más de 30 años. ¿QUÉ PUEDO HACER? Hay muchas cosas que puedes hacer para difundir la concientización antes y durante el Día Mundial de Duchenne, el 7 de septiembre. A …
Worldduchenneday.orgBản dịch được thực hiện bởi ... - worldduchenneday.org
WORLDDUCHENNEDAY.ORG NGÀY THẾ GIỚI NHẬN THỨC BỆNH DUCHENNE Tài liệu thông tin #WDAD2022 Bản dịch được thực hiện bởi Duchenne Việt Nam. WORLDDUCHENNEDAY.ORG CHÚNG TA CÓ THỂ LÀM GÌ? Có rất nhiều việc mà bạn có thể giúp chúng tôi trong việc lan truyền nhận thức trước và trong Ngày Thế Giới Nhận Thức Bệnh …
Worldduchenneday.orgIt’s World Duchenne Awareness Day! - Parent Project Muscular …
2020-09-07 · Today, September 7, is World Duchenne Awareness Day (#WDAD2020)! On this day we raise awareness for Duchenne around the globe. Each year, World Duchenne Awareness Day highlights a special theme that deserves more attention. This year that theme is Duchenne and the brain. PPMD is working hard to learn more about how Duchenne affects the brain ...
Parentprojectmd.orgWorld Duchenne Awareness Day 2020: Duchenne and the Brain
Today, 7 th September 2020, is World Duchenne Awareness Day. The theme this year is Duchenne and the Brain. As well as affecting muscles in the body, Duchenne Muscular Dystrophy can also affect the brain.
Duchenneuk.orgWorld Duchenne Day
As the only Canadian charity dedicated solely to funding research related to Duchenne, we are known and respected internationally, having granted more than $13.1M to research. It is only through the support of donors, families and communities across Canada and around the world that Jesse’s Journey can continue to fund the most promising research into […]
Morseconsulting.caWorld Duchenne Awareness Day 2021 - Duchenne UK
2021-07-29 · The DMD gene, encoding for the dystrophin protein, is the longest human gene known. It consists of 79 exons. This is why 7/9 is the date for World Duchenne Awareness Day. For more information about World Duchenne Organization, visit the WDO website or find out more about World Duchenne Awareness Day here. Published on 29 July 2021.
Duchenneuk.org
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