Socialduchenne.org


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  • Domain created: 2019-11-19T07:05:16Z
  • Domain updated: 2024-01-03T07:05:46Z
  • Domain expires: 2024-11-19T07:05:16Z 0 Years, 48 Days left
  • Website age: 4 Years, 317 Days
  • Registrar Domain ID: 219a679d03f04006b020cd6258625996-LROR
  • Registrar Url: https://webwhois.metaregistrar.com
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  • Registrar Abuse Contact Email: [email protected]
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Network
  • inetnum : 172.64.0.0 - 172.71.255.255
  • name : CLOUDFLARENET
  • handle : NET-172-64-0-0-1
  • status : Direct Allocation
  • created : 2010-07-09
  • changed : 2021-07-01
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Host Informations

  • IP address: 172.67.140.29
  • Location: United States
  • Latitude: 37.751
  • Longitude: -97.822
  • Timezone: America/Chicago

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Websites Listing

We found Websites Listing below when search with socialduchenne.org on Search Engine

Contact - Social Duchenne

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Socialduchenne.org

About DMD/BMD - Social Duchenne

Social Duchenne is an international project created by Duchenne Data Foundation a worldwide collaboration in order to enhance the understanding of the course of Duchenne muscular dystrophy (DMD) and Becker muscular dystrophy, two rare genetic muscle wasting diseases. Social Duchenne promotes education and information on psychosocial issues in Duchenne …

Socialduchenne.org

Social Duchenne - Social Duchenne

Social Duchenne is an international project created by the Duchenne Data Foundation to highlight psychosocial issues in Duchenne muscular dystrophy through educational materials, information and storytelling. The program is based on two main paths: education and awareness. The educational activities are directed to the Duchenne Community and address specific needs, …

Socialduchenne.org

Groups involved - Social Duchenne

Argentina ADM Argentina Brasil Aliança Distrofia Brasil Canada Jesse’s Journey Chile Fundación DSG-Duchenne Cz. Republic Parent Project Czech Republic Greece MDA Hellas Israel Little Steps Italy Parent Project aps Lebanon LAND Mexico ADMO A.C. Netherlands DPP NL Romania Parent Project Romania Spain Parent Project España Sri Lanka PPMD Sri Lanka Turkey DMD …

Socialduchenne.org

The Social

The Social. Looks like you're using an unsupported browser or operating system. The site may not work as expected. Please visit our FAQ page for more information.

Ctv.ca

The Social - Home - Facebook

The Social. 93,352 likes · 1,161 talking about this. THE SOCIAL brings a fresh, daily, perspective on the news, up-to-the-minute pop culture and lifestyle topics that matter most to Canadians in a...

Facebook.com

Social Central Community - Home - Facebook

Social Central Community. 3,537 likes · 12 talking about this. Social Central is a tagging app. VERY fun! Come and join!

Facebook.com

Saskatchewan Government Directory - Government of Saskatchewan

Google Translate Disclaimer. A number of pages on the Government of Saskatchewan's website have been professionally translated in French. These translations are identified by a yellow box in the right or left rail that resembles the link below.

Saskatchewan.ca

Duchenne Data Foundation - Social Duchenne

The Social Duchenne project is supported by the Duchenne Data Foundation. Duchenne Data Foundation (DDF) is a worldwide collaboration in order to enhance the understanding of the course of Duchenne Muscular Dystrophy (DMD) and Becker Muscular Dystrophy (BMD), the effects of treatments, the needs and preferences of DMD/BMD patients and all other aspects …

Socialduchenne.org

Raising awareness on psychosocial issues ... - World Duchenne

2020-03-25  · Today, Duchenne Data Foundation launched a new website called Social Duchenne. This project aims to highlight psychosocial issues in people affected by Duchenne or Becker muscular dystrophy (DMD and BMD). Inclusion and empowerment The project started in 2019, when project initiator Nicoletta Madia wanted to address social issues in the field of …

Worldduchenne.org

About Duchenne & Becker - Social Duchenne

What is Duchenne- and Becker muscular dystrophy? Duchenne and Becker MD are both X-linked recessive disorders. Both conditions are caused by mutations in the dystrophin gene, which encodes the protein dystrophin. A certain part of the DNA is missing, doubled, or changed so the code cannot be read properly by the body. Males have only one … Continue reading About …

Socialduchenne.org

Board & Staff - Duchenne Data Foundation

Rob Schreur. Board Member. Father of a daughter, Lizanne, with Duchenne Muscular Dystrophy. Background in Economics at Tilburg University, Law at Maastricht University and Risk Management at New York University-Stern School of Business. His most current professional role is Chief Investment Officer.

Duchennedatafoundation.org

Social Education – Integrated Network for Social Education

March 19, 2022. Posted in Moral Courage Tagged cdned, cdnpoli, communication, global issues, globaled, honest diversity, k-12 education, lifelong learning, moral courage, OnPOLI, OntEd, politics, viewpoint diversity, worldpoli 2 Comments. on Letters to Irshad – Letter 1. Be humble in addressing these sensitive topics, while keeping in mind ...

Socialeducation.ca

social-dog

Social.Dog will guard over your social property to ensure that your client receives a swift timely response.

Social.dog

Making Friends and Being Social | Duchenne.com

Making Friends and Being Social. Children with Duchenne often struggle with physical limitations and fatigue, cognitive deficits, as well as anxiety and depression that could make it more difficult to socialize with others. For example, muscle weakness and fatigue may make it difficult to keep up with other children during sports and games.

Duchenne.com

Contact us | Social Connection

Building the foundation to your social media strategy. We love our customers, so feel free set up a time for use to talk about your social media needs.

Socialconnection.social

Social Duchenne: Community - YouTube

Social activities, collaboration are essential to make a difference for Duchenne and Becker muscular dystrophy. Scolar, from Kenya, shares her experience in ...

Youtube.com

Social Duchenne: Graciela - YouTube

The story of Graciela Mendez from Mexico.https://www.socialduchenne.org/

Youtube.com

National Foundation for muscle disease - Home

National Foundation for muscle disease. 10 likes. Non-Governmental Organization (NGO)

Facebook.com

Social Duchenne (@socialduchenne) posted on Instagram ...

27 Likes, 0 Comments - Social Duchenne (@socialduchenne) on Instagram: “Elizabeth Vroom, chair of the World Duchenne Organization, shares the experience on how the Global…”

Instagram.com


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