Domain Informations
Smanewstoday.com lookup results from whois.cloudflare.com server:
- Domain created: 2014-10-08T19:21:04Z
- Domain updated: 2024-09-08T04:04:09Z
- Domain expires: 2025-10-08T19:21:04Z 1 Year, 17 Days left
- Website age: 9 Years, 348 Days
- Registrar Domain ID: 1879513892_DOMAIN_COM-VRSN
- Registrar Url: http://www.cloudflare.com
- Registrar WHOIS Server: whois.cloudflare.com
- Registrar Abuse Contact Email:
- Registrar Abuse Contact Phone: Not Available
- Name server:
- AIDEN.NS.CLOUDFLARE.COM
- JASMINE.NS.CLOUDFLARE.COM
Network
- inetnum : 141.193.213.0 - 141.193.213.255
- name : WPENG
- handle : NET-141-193-213-0-1
- status : Direct Allocation
- created : 2020-03-20
- changed : 2020-07-14
Owner
- organization : WPEngine, Inc.
- handle : WPENG
- address : Array,Austin,TX,78701,US
Abuse
- handle : ABUSE7875-ARIN
- name : Abuse
- phone : +1-512-273-3906
- email : [email protected]
Technical support
- handle : ADMIN7400-ARIN
- name : Admin
- phone : +1-877-973-6446
- email : [email protected]
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Host Informations
- IP address: 141.193.213.20
- Location: United States
- Latitude: 37.751
- Longitude: -97.822
- Timezone: America/Chicago
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Websites Listing
We found Websites Listing below when search with smanewstoday.com on Search Engine
SMA News Today – The Web's Daily Resource for Spinal ...
2022-03-14 · Visit the SMA News Today forums to connect with others in the SMA community. View Forums. Perspectives. Go to previous slide Go to next slide. March 14, 2022 Columns by Brianna Albers. The Recent Rare Disease Panel Made My Year. March 11, 2022 Columns by Alyssa Silva. I Am Here, and That Is Enough. March 9, 2022 Columns by Helen Baldwin. …
Smanewstoday.com#MDA 2022 – Evrysdi Safe at 1 Year in ... - smanewstoday.com
1 day ago · Share article via email Copy article link. Treatment with Evrysdi (risdiplam) continues to be safe and well-tolerated in people with spinal muscular atrophy (SMA) who have previously received other therapies for SMA, according to one-year data from the JEWELFISH clinical trial. Results also suggest that motor function has been stable in JEWELFISH participants after a …
Smanewstoday.comRaDaR Serves as Starting Point for ... - smanewstoday.com
1 day ago · Share article via email Copy article link. Patient registries are a hot topic of rare disease research and many organizations are taking advantage of this resource by signing up their patient communities and connecting with researchers. Eric Sid, MD, program officer for the Office of Rare Diseases Research (ORDR), said it is difficult to estimate how many registries …
Smanewstoday.comEmail Forum Support – SMA News Today Forums
SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. …
Smanewstoday.comMy Beautiful Journey Toward Personal Growth - SMA News Today
2 days ago · Note: SMA News Today is strictly a news and information website about the disease. It ... Your email address will not be published. Your Name. Your Email. Your Comment. Post Comment. Recent Posts. #MDA 2022 – Evrysdi Safe at 1 Year in Previously-treated Patients March 18, 2022; RaDaR Serves as Starting Point for Creating Rare Disease Registry March …
Smanewstoday.comThe Recent Rare Disease Panel Made My Year – SMA News Today
2022-03-14 · Share article via email Copy article link. Like most things when it comes to Sherry, it was a no-brainer. A few weeks ago, I woke to a string of messages in our shared Discord server. An SMA News Today columnist, she’d been asked to participate in this year’s Rare Disease Day (RDD) panel, organized by the site’s publisher, BioNews. That was my first time hearing about …
Smanewstoday.comThe Art of Snagging Angel Wings – SMA News Today
2022-03-16 · Note: SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, ... Your email address will not be published. Your Name. Your Email. Your Comment. Post Comment. Recent Posts. The Art of Snagging Angel Wings March 16, 2022; #MDA2022 – ‘Amazing’ Walking Ability Seen in SMA Children on …
Smanewstoday.comContact - HCP SMA News Today
SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. …
Hcp.smanewstoday.comSomi Igbene – SMA News Today
2022-02-23 · Alabama Joins 42 US States in Screening Newborns for SMA. The Alabama Department of Public Health (ADPH) has announced that spinal muscular atrophy (SMA) is now among the list of disorders being routinely screened in newborns. Testing infants for the disorder began on Feb. 14, the ADPH stated in a press release. SMA was added to the state’s ...
Smanewstoday.comSurge in Telehealth Brings Access ... - smanewstoday.com
2022-02-28 · Share article via email Copy article link. A rare disease puts an economic burden on the patients, families, and caregivers that it affects, and will no doubt be an integral part of discussions on Rare Disease Day 2022, which brings international awareness about the more than 300 million people living with rare disorders. Part of that burden, estimated at nearly $1 …
Smanewstoday.comAn Invitation to Uplift the Rarer Than Rare – SMA News Today
2022-02-28 · Note: SMA News Today is strictly a news and information website about the disease. It ... Your email address will not be published. Your Name. Your Email. Your Comment. Post Comment. Recent Posts. First Newborn Screening for SMA in UK Launched in Oxford Pilot Study March 14, 2022; The Recent Rare Disease Panel Made My Year March 14, 2022; I Am …
Smanewstoday.comWe’re All Rare in Our Own Ways – SMA News Today
2022-02-25 · Note: SMA News Today is strictly a news and information website about the disease. It ... Your email address will not be published. Your Name. Your Email. Your Comment. Post Comment. Recent Posts. First Newborn Screening for SMA in UK Launched in Oxford Pilot Study March 14, 2022; The Recent Rare Disease Panel Made My Year March 14, 2022; I Am …
Smanewstoday.comBNS Staff, Author at HCP SMA News Today
2021-01-26 · SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a …
Hcp.smanewstoday.comPrivacy Policy - HCP SMA News Today
SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. …
Hcp.smanewstoday.comSMA News Today - Home - Facebook
SMA News Today. 5 hrs ·. Day 10 of 31 Days of SMA. Topic: The Power of a Positive Physician-Family Dynamic. This is Carolyn Saylor’s story: We live in a rural area in central Wisconsin, and when our daughter was diagnosed with SMA type 2 in 1991, the local specialists felt we’d be “lucky” if Britt lived to the age of 7.
Facebook.comSigns and Symptoms – HCP SMA News Today
SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. …
Hcp.smanewstoday.comRare Disease Day Events Bring ... - hcp.smanewstoday.com
2022-02-09 · Rare Disease Day Events Bring Awareness, Equity to Patients. Feb 9, 2022. Since 2008, Rare Disease Day — the last day of February — has brought together patients, caregivers, family members, friends, and advocates from around the world to raise awareness and improve equity for the more than 7,000 known rare diseases that affect more than ...
Hcp.smanewstoday.comWhois smanewstoday.com
Whois Lookup for smanewstoday.com. WHOIS. Domains. Registration. Register a Domain Get your domain name now; Domain ... Business Email Simple & Easy to use Branded Email Ideal for beginners & small businesses 5 GB Storage | $0.98/acc/mo; Enterprise Email Advanced Email for growing businesses & teams Includes Shared Contacts & Calendars 30 GB Storage …
Whois.comSMA News Today on Twitter: "Rare diseases put an economic ...
2022-03-08
Twitter.comMy SMA Challenges Would Be Eased by ... - HCP SMA News Today
2018-08-10 · SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a …
Hcp.smanewstoday.com
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