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Retina-ird.org lookup results from whois.dynadot.com server:
- Domain created: 2020-12-09T14:30:34Z
- Domain updated: 2024-05-13T16:16:22Z
- Domain expires: 2025-12-09T14:30:34Z 1 Year, 19 Days left
- Website age: 3 Years, 345 Days
- Registrar Domain ID: e83b24d40f4d4d79853c975eb64b0181-LROR
- Registrar Url: http://www.dynadot.com
- Registrar WHOIS Server: whois.dynadot.com
- Registrar Abuse Contact Email: [email protected]
- Registrar Abuse Contact Phone: +1.6502620100
- Name server:
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Network
- inetnum : 54.64.0.0 - 54.95.255.255
- name : AMAZON-2011L
- handle : NET-54-64-0-0-1
- status : Direct Allocation
- created : 2011-12-08
- changed : 2024-01-24
- desc : All abuse reports MUST include:,* src IP,* dest IP (your IP),* dest port,* Accurate date/timestamp and timezone of activity,* Intensity/frequency (short log extracts),* Your contact details (phone and email) Without these we will be unable to identify the correct owner of the IP address at that point in time.
Owner
- organization : Amazon Technologies Inc.
- handle : AT-88-Z
- address : Array,Seattle,WA,98109,US
Abuse
- handle : AEA8-ARIN
- name : Amazon EC2 Abuse
- phone : +1-206-555-0000
- email : [email protected]
Technical support
- handle : ANO24-ARIN
- name : Amazon EC2 Network Operations
- phone : +1-206-555-0000
- email : [email protected]
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Host Informations
- IP address: 54.67.42.145
- Location: San Jose United States
- Latitude: 37.3388
- Longitude: -121.8914
- Timezone: America/Los_Angeles
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Websites Listing
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retina-ird.org
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Retina-ird.orgRetina International — Webinars
IRDCOUNTS: US & Canada IRD Cost of Illness Study, A Panel Discussion - October 2020. On Thursday October 22nd, 12.00 EST, Retina International were delighted to host a webinar discussing the key findings and impacts of our new groundbreaking US & Canada Cost-of-Illness Study. YouTube.
Retina-international.orgGenetic Testing for Inherited Retinal Diseases through the ...
2020-02-07 · Email Share on Facebook; Tweet The Foundation Fighting Blindness, in partnership with Blueprint Genetics and InformedDNA, offers no-cost genetic testing and counseling to people affected by the entire spectrum of inherited retinal diseases (IRDs) including retinitis pigmentosa (RP), Usher syndrome, and Stargardt disease. The test is available to those clinically …
Fightingblindness.orgMy Retina Tracker Program - Blueprint ... - Blueprint …
2021-10-30 · This program is for individuals with a clinical diagnosis of an inherited retinal degeneration (IRD) living in the United States and US territories. The eligibility criteria are listed below in “Who is Eligible for Testing.” The program offers people with an IRD access to the highest quality genetic testing and genetic counseling. Although it is not required for …
Blueprintgenetics.comRetina International - Inherited Retinal Diseases (IRD)
Retina International is a global umbrella organisation for patient-led charities and foundations who support research into rare, genetically inherited and age-related retinal conditions. RI believes that education leading to participation is a key driver in successful innovation. Retina International strives to – Educate its community who in ...
Ird.retinaint.orgOn Demand Webinar: The New Management of IRD Patients in ...
[email protected] Français. On Demand Webinar: The New Management of IRD Patients in the Era of Gene Therapy – A Team Approach. For Ophthalmologists; Pediatric Ophthalmology and Strabismus; Retina ; Learning Webinar Available on Demand. A medical education program for a broad Canadian medical audience focused on inherited retinal diseases and gene therapy. It …
Cosprc.caRetina International – Know Your Code — Pilot Study ...
In 2019, IRD COUNTS – a patient led multi-stakeholder consortium managed by Retina International, engaged Deloitte Access Economics to estimate the disease burden and economic impact of Inherited Retinal Dystrophies (IRDs) in the Republic of Ireland (RoI) and United Kingdom (UK) from a societal perspective – a cost-of-illness study. This approach involved …
Kyc.retinaint.orgGene Therapy for Inherited Retinal Degeneration | Journal ...
2019-03-15 · Introduction. Inherited retinal degeneration (IRD), also called retinal dystrophy, is composed of a group of rare retinal diseases commonly caused by gene mutations leading to progressive degeneration of retinal photoreceptors. 1 IRD affects nearly 2 million people worldwide. 2 Around 300 genes have been implicated in IRD, and that number is growing. IRD …
Liebertpub.comSign Up For Updates - LUXTURNA
Changes in the retina (the thin layer of tissue in the back of the eye) that can lead to vision loss including: development of a hole, thinning, or loss of function of the retina, separation of the layers in the center of the retina, or bleeding in the retina. breaks in or wrinkling on the surface of the retina or detachment of the retina.
Luxturna.comProtocol: Perspectives of people with inherited retinal ...
2021-06-22 · A new ‘Attitudes to Gene Therapy for the Eye’ tool will be developed following consultation with people with inherited retinal disease (IRD) and content matter experts. Australians with IRD or their guardians will be asked to complete an internet-based survey comprising existing quality of life and visual function instruments and items for the newly …
Ncbi.nlm.nih.govInherited Retinal Dystrophies, Clinical Breakthroughs and ...
• Recognize the signs and symptoms of IRD • Describe the IRD patient journey to diagnosis, and referral pathway • Understand the value of genetic screening in patients who present with an inherited or a suspected genetically-based ocular disease. 2. Advances in Inherited Retinal Dystrophies and Gene Replacement Therapy – The Future is Now • Understand the …
Cosprc.caLooking into the genetics of inherited retinal diseases ...
2020-09-04 · These new genes were added to the growing panel of IRD genes for genetic testing and today, we know over 250 genes. I also work closely with Dr. Michel Cayouette who is the chair of FBC’s Scientific Advisory Board. We have discovered three new retinal genes together, which has led to insights into how to fix the retina.
Fightingblindness.caGene Therapy: The New Frontier for Inherited Retinal Disease
2017-02-20 · Retinal tissue with degeneration and thinning is more prone to macular hole formation and iatrogenic retinal tears than healthy, thick retinal tissue. Typically surgeons try to not use air or gas to avoid bleb displacement. Postoperative supine positioning can maximize settlement of the bleb over the posterior pole. The timing for blebs to settle after surgery varies …
Retina-specialist.comRetina International announces the ... - Fighting Blindness
2020-09-25 · Retina International has announced the launch of a new genetic testing advocacy portal, Know Your Code, to mark World Retina Day 2020 on Saturday 26 September. The portal, supported by an unrestricted educational grant from the Allergan Foundation, is being launched as part of a call to action for the Inherited Retinal Degeneration (IRD) community to advocate …
Fightingblindness.ieRetina International – Know Your Code — What is an IRD?
What is an IRD? Sometimes, when genetic mutations have a negative effect, the resulting protein that your cell makes doesn’t work the way it’s supposed to. This can have drastic downstream effects on the overall function of a cell. For example, a genetic mutation in a waste-disposing protein might stop it from working properly. In this case, if a cell cannot get rid of its waste, it …
Kyc.retinaint.orgHCP resources: IRD patient journey and referral
Email. All healthcare professionals involved in IRD patient journey have a key role. Knowledge of IRD symptoms, genetic testing, available treatments and clinical trials is of paramount importance to help IRD patients in planning their life and find the support they need. Once a healthcare professional suspects an IRD, referral to an IRD ...
Proqr.comRPE65-associated inherited retinal diseases: consensus ...
2021-06-04 · This research aimed to establish recommendations on the clinical and genetic characteristics necessary to confirm patient eligibility for gene supplementation with voretigene neparvovec. An expert steering committee comprising an interdisciplinary panel of Italian experts in the three fields of medical specialisation involved in the management of RPE65-associated …
Ojrd.biomedcentral.comA Gene Therapy Primer for People with Inherited Retinal ...
2020-08-12 · Email Share on Facebook; Tweet Can Gene Therapy Address Your Inherited Retinal Disease? When it comes to saving or restoring vision for people with inherited retinal diseases (IRDs) such as retinitis pigmentosa, Usher syndrome, or Stargardt disease, no approach has gained more attention than gene therapy. And rightfully so. The first gene therapy for the …
Fightingblindness.orgMeiraGTx Announces the Presentation of Two Novel Inherited ...
2021-10-19 · MeiraGTx announced three poster presentations at the European Society of Gene and Cell Therapy (ESGCT) 2021 Annual Congress. Two preclinical programs addressing inherited retinal diseases (IRDs) caused by mutations in KCNV2 and GUCY2D are presented with data supporting the development of these viral vectors as gene therapies.. A third presentation …
Eyewire.newsNorth East Florida Optometric Society - Retina ...
2021-09-23 · Retina Advancements in IRD and DR Thursday, September 23, 2021 6:30 PM Location: Epping Forest Yacht and Country Club Event registration disabled. Event registration is currently unavailable. Please contact site administrator. ...
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