Rarediseases.info.nih.gov


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Network
  • inetnum : 18.154.0.0 - 18.155.255.255
  • name : AMAZON-CF
  • handle : NET-18-154-0-0-1
  • status : Reallocated
  • created : 1995-01-23
  • changed : 2022-09-30
Owner
  • organization : Amazon.com, Inc.
  • handle : AMAZON-4
  • address : Array,SEATTLE,WA,98101-1244,US
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  • phone : +1-206-555-0000
  • email : [email protected]
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Host Informations

  • IP address: 18.154.227.83
  • Location: United States
  • Latitude: 37.751
  • Longitude: -97.822
  • Timezone: America/Chicago

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Websites Listing

We found Websites Listing below when search with rarediseases.info.nih.gov on Search Engine

Diseases - Genetic and Rare Diseases Information Center

Browse the GARD list of rare diseases to find topics of interest. This list includes both the main, and any alternate names for each disease. Inclusion on this list does not serve as official recognition by the NIH that a disease is rare. Other names: Del (10) (q22.3q23.3); Deletion …

Rarediseases.info.nih.gov

Genetic and Rare Diseases Information Center (GARD) – an NCATS …

Genetic and Rare Diseases Information Center (GARD) – an NCATS Program ...

Rarediseases.info.nih.gov

About - Genetic and Rare Diseases Information Center

GARD is a program of the National Institutes of Health (NIH) that provides free access to reliable, easy to understand information about genetic and rare diseases. GARD's Mission. …

Rarediseases.info.nih.gov

GARD Contact Form - National Institutes of Health

GARD Contact Form. Please use this form to contact GARD staff, especially if you need help finding information or resources about a rare or undiagnosed disease. Personal information …

Contact.rarediseases.info.nih.gov

Rare Diseases | National Institutes of Health (NIH)

2020-02-11  · Rare Diseases. Pompe disease is a rare, inherited disorder characterized by the deficiency of an enzyme called acid alpha-glucosidase (GAA). One of the primary features of …

Nih.gov

rarediseases.info.nih.gov

Rarediseases.info.nih.gov

Rarediseases.info.nih.gov

NIH/Office of Rare Disease Research

The Office of Rare Disease Research was established in 1993 within the Office of the Director (OD), National Institutes of Health (NIH), to respond to the reporting requirements on the …

Rarediseases.org

Genetic and Rare Diseases Information Center (GARD)

2019-10-08  · The GARD Information Center provides timely access to experienced Information Specialists who provide current and accurate information about genetic and rare diseases in …

Nei.nih.gov

Genetic and Rare Diseases Information Center (GARD)

2019-10-23  · The Genetic and Rare Diseases Information Center (GARD) is a program of the National Center for Advancing Translational Sciences (NCATS) and is funded by two parts of …

Nei.nih.gov

Health Information | National Institutes of Health (NIH)

Find science-based health information on symptoms, diagnosis, treatments, research, clinical trials and more from NIH, the nation’s medical research agency.

Nih.gov

Genetic and Rare Diseases (GARD) Information Center

Description. Established by the National Human Genome Research Institute (NHGRI) and the Office of Rare Diseases (ORD) at the National Institutes of Health, the Genetic and Rare …

Rarediseases.org

Rare Diseases - National Eye Institute

2021-12-22  · Visit the Rare Diseases Clinical Research Network website to get information about many uncommon conditions.; Get in touch with the Genetic and Rare Diseases Information …

Nei.nih.gov

Genetic and Rare Diseases Information Center - Genome.gov

2018-05-18  · The Genetic and Rare Diseases Information Center (GARD) was created in 2002 by the National Human Genome Research Institute (NHGRI) and the Office of Rare Diseases …

Genome.gov

Rare Diseases Community Resources | National Center …

2022-05-10  · For Patients. Access resources through NCATS’ Genetic and Rare Diseases Information Center (GARD): Call the GARD Information Center at 1-888-205-2331 to speak to an information specialist about rare or genetic …

Ncats.nih.gov

Home | Rare Diseases Clinical Research Network

To learn about other rare diseases, please visit the Genetic and Rare Diseases Information Center (GARD), which is an NIH program that helps the public find reliable information about …

Rarediseasesnetwork.org

Rare Diseases Clinical Research Network (RDCRN)

2022-03-23  · The RDCRN program is designed to advance medical research on rare diseases by providing support for clinical studies and facilitating collaboration, study enrollment and data …

Ncats.nih.gov

Dystonia - NORD (National Organization for Rare Disorders)

Summary. Dystonia is a general term for a large group of movement disorders that vary in their symptoms, causes, progression, and treatments. This group of neurological conditions is …

Rarediseases.org

Rare Disease Day at NIH 2022 | National Center for Advancing ...

2022-05-11  · Event Details. Rare Disease Day at NIH was held virtually on Monday, Feb. 28, 2022, from 10 a.m. to 6 p.m. EST. This event featured panel discussions, rare diseases …

Ncats.nih.gov

Find Diseases We Study - Rare Diseases Clinical Research Network

The Rare Diseases Clinical Research Network (RDCRN) is an NIH-funded research network of 23 active consortia or research groups—teams of researchers, patients and clinicians—each …

Rarediseasesnetwork.org

Rare Disease InfoHub

2019-04-23  · What is a Rare Disease? A rare disease is defined as a condition that affects fewer than 1 in 200,000 patients in the United States or 1 in 2000 in Europe. Many rare diseases are …

Rarediseases.oscar.ncsu.edu


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