Raredisease.org.uk

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Email address with raredisease.org.uk

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We found Websites Listing below when search with raredisease.org.uk on Search Engine

Contact Us - Rare Disease UK

Due to the current COVID-19 pandemic Genetic Alliance UK has made the decision to close our offices and work remotely – this includes Rare Disease UK. If you have a query, please email [email protected] as our phone lines are not being monitored. If you have a press enquiry please ring our press officer on 0300 124 0441.

Raredisease.org.uk

Contact Us - Rare Disease UK

Due to the current COVID-19 pandemic Genetic Alliance UK has made the decision to close our offices and work remotely - this includes Rare Disease UK. If you have a query, please email [email protected] as our phone lines are not being monitored.If you have a press enquiry please ring our ...

Raredisease.org.uk

CONTACT A FAMILY - Rare Disease UK

Raredisease.org.uk

RDD 2022 Home - Rare Disease UK

Social media takeovers. Our social media channels will be taken over by people with rare conditions, their family members and the organisations that support them – pop over and say hi! Email: [email protected] to sign up …

Raredisease.org.uk

Contact Us - NORD (National Organization for Rare …

Patients can contact NORD’s Patient Services Representatives at 1- 800-999-6673 during the following hours: Monday-Thursday 8:30 am – 7:00 pm EST. Friday 8:30 am – 6:00 pm EST. Si deseas hablar con alguien en espanol por favor llame al (844) 259-7178 para asistencia. Please note that NORD provides this information for the benefit of the ...

Rarediseases.org

Home - NORD (National Organization for Rare Disorders)

Please note that NORD provides this information for the benefit of the rare disease community. NORD is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Patients must rely on the personal and individualized medical advice of their qualified health care professionals before …

Rarediseases.org

Contact Us | Get in Touch | South West Rare Disease Policy ...

If you would like to find out more about supporting our work or getting involved in a discussion on rare diseases, please contact us using the methods below. …

Rarediseasessouthwest.org.uk

Contact – Northern Ireland Rare Disease Partnership

To get in touch with our Chair: [email protected]. For all financial enquiries: [email protected]. For outreach help and support: [email protected]. For all communications including members who are interested in sharing their stories, enquiries about focus groups, PR and media enquiries contact: [email protected].

Nirdp.org.uk

raredisease.org.uk Home | Rare Disease UK

Raredisease.org.uk registered under .UK top-level domain. Check other websites in .UK zone . The last verification results, performed on (August 11, 2020) raredisease.org.uk show that raredisease.org.uk has an expired SSL certificate issued by …

Webrate.org

Rare Disease UK (RDUK) - Disability Information Scotland

2021-05-24 · Contact; Login; Search Close. Search for Search Close search Submit. Home; Information, Help & Advice ; Scottish Disability Directory; Rare Disease UK (RDUK) Rare Disease UK (RDUK) Support for people with rare diseases and all who support them. Services provided: Rare Disease UK (RDUK) is the national alliance for people with rare diseases and all who …

Disabilityscot.org.uk

Rare Disease Day – Terms & Conditions

By using this platform you are agreeing to Rare Disease UK’s terms and conditions outlined above. If you have any questions, or would like to talk to one of the Rare Disease UK team, please email [email protected] or call 0207 831 0883.

Rarereality.raredisease.org.uk

RareDisease.net

Raredisease.net

Contact Us | SWAN UK

Contact Us. Due to the current COVID-19 pandemic Genetic Alliance UK has made the decision to close our office and work remotely. If you have a query, please email [email protected] or call 0300 124 0441.

Undiagnosed.org.uk

Resources, Tools and News for Clinicians and Researchers ...

Rarediseases.org

Contact Us | Genetic Alliance UK

COVID-19 pandemic notice. Due to the current COVID-19 pandemic Genetic Alliance UK has made the decision to close our offices and work remotely. If you have a query, please email [email protected] create new email or call 0300 124 0441.

Geneticalliance.org.uk

Specific Rare Disease Charities - Rare Care UK

Addisons Disease Self Help Group. The ADSHG is the UK support group for men, women and children diagnosed with Addison's Disease (or adrenal insufficiency). www.Addisons.org.uk. Adie Syndrome. UK. The Eye Care Trust. Raises awareness of all aspects of eye health and the importance of regular eyecare. www.EyeCareTrust.org.uk.

Rarecareuk.org

Rare Disease UK - Would you like to host a fundraiser for ...

Would you like to host a fundraiser for Rare Disease UK? Email [email protected] with your ideas! #raredisease #charity #fundraising

Facebook.com

Genetic and Rare Diseases Information Center (GARD) – an ...

Rarediseases.info.nih.gov

Rare Disease UK - Do you have a #raredisease and are ...

Do you have a #raredisease and are worried about coronavirus? We have published resources and support for those most at risk in England, Wales and Scotland. We are monitoring the information on...

Facebook.com

About EURORDIS - Rare Diseases Europe

The voice of rare disease patients in Europe The international voice of people living with rare diseases Bringing together patients, families and experts to share experiences in a moderated multi-language forum. The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be …

Eurordis.org

Domains Expiration Date Updated

Site	Provider	Expiration Date
reevin.com	bigrock.com	2 Years, 54 Days
acrysilcorporateinfo.com	publicdomainregistry.com	-2 Years, -72 Days
sms.frl	tucows.com	-2 Years, -51 Days
partcomap.com	name.com	-2 Years, -73 Days
fischerclinic.com	godaddy.com	-1 Years, -285 Days
andrisnelsons.com	networksolutions.com	1 Year, 78 Days
by-wifi.com	nic.ru	-1 Years, -283 Days
beluminus.org	namecheap.com	-1 Years, -218 Days
extbel.com	hoster.by	-2 Years, -205 Days
globalit.com	godaddy.com	4 Years, 242 Days

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