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- IP address: 81.19.159.9
- Location: Austria
- Latitude: 48.2
- Longitude: 16.3667
- Timezone: Europe/Vienna
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Websites Listing
We found Websites Listing below when search with nf-patients.eu on Search Engine
Support – NF Patients United
NF Patients United. Mission and Goals; Projects; NF Research; Support. Donate; Membership; Activities. Sharing best practices; NF Patients Academy 2022; Contact; Support . We’re stronger together – that’s why we are launching the NF 50/50 Challenge! ALTRUJA-PAGE-I8DW. English. Bulgarian Catalan Croatian Czech Danish Dutch English Finnish French German Greek …
Nf-patients.euActivities – NF Patients United
We refer to patient participation as a concept, ... NF Patients United. Be part of the swarm and help us end NF! #endnf #nfpatientsunited. Find here an overview of our activities: 2020 …
Nf-patients.euWhat is NF? – NF Patients United
Patients can go blind, deaf, develope chronic pain or life threatening tumors, amongst a large variety of other potential symptoms. Until now there is no cure for any of the three diseases. Of …
Nf-patients.euMichaela Artner – NF Patients United
NF Patients Academy 2022; Contact; Author: Michaela Artner. Page 1 / 1. Shine A Light. May is NF Awareness-Month. 2019-05-21. Shine A Light. NF-Walk. 2019-05-07. Shine A Light. Shine …
Nf-patients.euResearch on NF – NF Patients United
Highly respected experts in the field of NF show actual research for NF Patients. Watch their presentations here: NF1 Tumor Surveillance by Eric Legius. Eric Legius from the Centre for …
Nf-patients.euNF Patients Academy – Survey – NF Patients United
NF Patients Academy – Survey. Our NF Young Patient Academy 2020 (Summer School) will be organized as an Online event this year, due to Corona and difficulties in travelling. As we want …
Nf-patients.euNF Patients United – Open Meeting 2020 – NF Patients United
In the NF Patient United Annual Meeting 2020 our members shared their best practices and national projects for NF patients, which they conducted in this years. Watch their …
Nf-patients.euNF Patients United - Home - Facebook
NF Patients United, Wien. 684 likes · 4 talking about this. NF Patients United is an umbrella organizations for patient organizations all over Europe combining their efforts to fight against...
Facebook.comNF Patients United (NFPU) | LobbyFacts Database
NF Patients United is an international umbrella organization of non profit patient organizations that advocate for people affected by Neurofibromatosis (Neurofibromatosis Type 1, …
Lobbyfacts.euNf-patients.eu NF Patients United – Global Network of …
Nf-patients.eu belongs to World4You Internet Services GmbH. Check the list of other websites hosted by World4You Internet Services GmbH.. Nf-patients.eu registered under .EU top-level …
Webrate.orgRegional Contacts - Neurofibromatosis Northeast
Below is a list of names and email addresses of families across the northeast, families like yours. Connecticut: ... But, our programs that serve NF patients and families were not stopped. We …
Nfnortheast.orgThe registration for the NF Patients... - NF Patients United | Facebook
The registration for the NF Patients United Annual Meeting next week from 18th-19th December is open! We welcome all NF interested people to the public event about "Best Practice …
Facebook.comNF Registry - CTF Patient Portal
Welcome to the NF REGISTRY, the patient-driven resource for accelerating research and finding treatments for all forms of neurofibromatosis (NF). Sponsored by the Children’s Tumor …
Nfregistry.orgNF1 Patient Registry - Neurofibromatosis Northeast
2022-06-04 · The Washington University Neurofibromatosis Center has launched a unique internet-based NF Registry (NF1 Patient Registry Initiative) that will collect medical …
Nfnortheast.orgPatient Advocacy Group - GENTURIS
EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 733 rare disease patient organisations in 64 countries. EURORDIS is also implementing an …
Genturis.euNew salt faces: Here are some of our... - NF Patients United
See more of NF Patients United on Facebook. Log In. or
Facebook.comNew salt faces: Here are some of our... - NF Patients United
Nella giornata delle malattie Rare, Ananas supporta la #nf5050challenge di NF Patients United, una sfida sui social media per aiutare le persone...
Facebook.comNF Patients United - Posts | Facebook
NF Patients United, Wien. 725 likes · 44 talking about this. NF Patients United is an umbrella organizations for patient organizations all over Europe combining their efforts to fight against...
Business.facebook.comNF Patient Survey - Neurofibromatosis Northeast
You may forward the survey link to other NF patients, families or friends within the New England and New York area. CLICK HERE TO TAKE THE SURVEY. THANK YOU! Connect With Us. …
Nfnortheast.orgMichaela Artner - On December 18th and 19th NF Patients.
On December 18th and 19th NF Patients United (NFPU) will host its annual meeting. We welcome all NF patients, patient organisations, caregivers and all interested to this meeting …
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