Nf-patients.eu


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Nf patients united



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  • IP address: 81.19.159.9
  • Location: Austria
  • Latitude: 48.2
  • Longitude: 16.3667
  • Timezone: Europe/Vienna

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Email address with nf-patients.eu

Found 1 emails of this domain
1. [email protected]

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Websites Listing

We found Websites Listing below when search with nf-patients.eu on Search Engine

Support – NF Patients United

NF Patients United. Mission and Goals; Projects; NF Research; Support. Donate; Membership; Activities. Sharing best practices; NF Patients Academy 2022; Contact; Support . We’re stronger together – that’s why we are launching the NF 50/50 Challenge! ALTRUJA-PAGE-I8DW. English. Bulgarian Catalan Croatian Czech Danish Dutch English Finnish French German Greek …

Nf-patients.eu

Activities – NF Patients United

We refer to patient participation as a concept, ... NF Patients United. Be part of the swarm and help us end NF! #endnf #nfpatientsunited. Find here an overview of our activities: 2020 …

Nf-patients.eu

What is NF? – NF Patients United

Patients can go blind, deaf, develope chronic pain or life threatening tumors, amongst a large variety of other potential symptoms. Until now there is no cure for any of the three diseases. Of …

Nf-patients.eu

Michaela Artner – NF Patients United

NF Patients Academy 2022; Contact; Author: Michaela Artner. Page 1 / 1. Shine A Light. May is NF Awareness-Month. 2019-05-21. Shine A Light. NF-Walk. 2019-05-07. Shine A Light. Shine …

Nf-patients.eu

Research on NF – NF Patients United

Highly respected experts in the field of NF show actual research for NF Patients. Watch their presentations here: NF1 Tumor Surveillance by Eric Legius. Eric Legius from the Centre for …

Nf-patients.eu

NF Patients Academy – Survey – NF Patients United

NF Patients Academy – Survey. Our NF Young Patient Academy 2020 (Summer School) will be organized as an Online event this year, due to Corona and difficulties in travelling. As we want …

Nf-patients.eu

NF Patients United – Open Meeting 2020 – NF Patients United

In the NF Patient United Annual Meeting 2020 our members shared their best practices and national projects for NF patients, which they conducted in this years. Watch their …

Nf-patients.eu

NF Patients United - Home - Facebook

NF Patients United, Wien. 684 likes · 4 talking about this. NF Patients United is an umbrella organizations for patient organizations all over Europe combining their efforts to fight against...

Facebook.com

NF Patients United (NFPU) | LobbyFacts Database

NF Patients United is an international umbrella organization of non profit patient organizations that advocate for people affected by Neurofibromatosis (Neurofibromatosis Type 1, …

Lobbyfacts.eu

Nf-patients.eu NF Patients United – Global Network of …

Nf-patients.eu belongs to World4You Internet Services GmbH. Check the list of other websites hosted by World4You Internet Services GmbH.. Nf-patients.eu registered under .EU top-level …

Webrate.org

Regional Contacts - Neurofibromatosis Northeast

Below is a list of names and email addresses of families across the northeast, families like yours. Connecticut: ... But, our programs that serve NF patients and families were not stopped. We …

Nfnortheast.org

The registration for the NF Patients... - NF Patients United | Facebook

The registration for the NF Patients United Annual Meeting next week from 18th-19th December is open! We welcome all NF interested people to the public event about "Best Practice …

Facebook.com

NF Registry - CTF Patient Portal

Welcome to the NF REGISTRY, the patient-driven resource for accelerating research and finding treatments for all forms of neurofibromatosis (NF). Sponsored by the Children’s Tumor …

Nfregistry.org

NF1 Patient Registry - Neurofibromatosis Northeast

2022-06-04  · The Washington University Neurofibromatosis Center has launched a unique internet-based NF Registry (NF1 Patient Registry Initiative) that will collect medical …

Nfnortheast.org

Patient Advocacy Group - GENTURIS

EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 733 rare disease patient organisations in 64 countries. EURORDIS is also implementing an …

Genturis.eu

New salt faces: Here are some of our... - NF Patients United

See more of NF Patients United on Facebook. Log In. or

Facebook.com

New salt faces: Here are some of our... - NF Patients United

Nella giornata delle malattie Rare, Ananas supporta la #nf5050challenge  di NF Patients United, una sfida sui social media per aiutare le persone...

Facebook.com

NF Patients United - Posts | Facebook

NF Patients United, Wien. 725 likes · 44 talking about this. NF Patients United is an umbrella organizations for patient organizations all over Europe combining their efforts to fight against...

Business.facebook.com

NF Patient Survey - Neurofibromatosis Northeast

You may forward the survey link to other NF patients, families or friends within the New England and New York area. CLICK HERE TO TAKE THE SURVEY. THANK YOU! Connect With Us. …

Nfnortheast.org

Michaela Artner - On December 18th and 19th NF Patients.

On December 18th and 19th NF Patients United (NFPU) will host its annual meeting. We welcome all NF patients, patient organisations, caregivers and all interested to this meeting …

Facebook.com


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