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Domain Informations
Marfan.org lookup results from http://whois.cloudflare.com server:
- Domain created: 1996-01-04T05:00:00Z
- Domain updated: 2023-11-19T20:04:55Z
- Domain expires: 2026-01-03T05:00:00Z 1 Year, 85 Days left
- Website age: 28 Years, 279 Days
- Registrar Domain ID: 9ed3e7aff34b44259f8730437292fdb0-LROR
- Registrar Url: http://www.cloudflare.com
- Registrar WHOIS Server: http://whois.cloudflare.com
- Registrar Abuse Contact Email: [email protected]
- Registrar Abuse Contact Phone: +1.6503198930
- Name server:
- jasmine.ns.cloudflare.com
- valentin.ns.cloudflare.com
Network
- inetnum : 23.185.0.0 - 23.185.0.255
- name : PANTHEON-IP4
- handle : NET-23-185-0-0-1
- status : Direct Allocation
- created : 2016-07-21
- changed : 2018-03-15
- desc : https://pantheon.io/
Owner
- organization : Pantheon
- handle : PS-747
- address : Array,San Francisco,CA,94108,US
Technical support
- handle : DTS41-ARIN
- name : Strauss, David Timothy
- phone : +1-415-800-1969
- email : [email protected]
Abuse
- handle : PANTH3-ARIN
- name : Pantheon Abuse
- phone : +1-415-780-9765
- email : [email protected]
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Host Informations
- IP address: 23.185.0.4
- Location: United States
- Latitude: 37.751
- Longitude: -97.822
- Timezone: America/Chicago
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Email address with marfan.org
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Websites Listing
We found Websites Listing below when search with marfan.org on Search Engine
The Marfan Foundation | Know the Signs | Fight for Victory
The Marfan Foundation is the primary source for up-to-date and trustworthy information for patients and family members as well as healthcare providers and researchers. If you or someone you love has Marfan syndrome or a related conditions, we offer easy-to-understand materials to help you on your medical journey. Read News Articles.
Marfan.orgPHYSICAL ACTIVITIES GUIDELINES - The Marfan Foundation
Physical Activities Guidelines. Regular exercise improves both physical and emotional well-being and can be incorporated safely into the routine of people with Marfan syndrome. Therefore, they are encouraged to adapt health measures that protect them from Marfan features that can worsen and from medical conditions that are simply part of the ...
Info.marfan.orgThe Marfan Blog - Know the Signs. Fight for Victory
Creative, free-spirited, business owner, and recent college graduate, Adariel Lee, of the Bronx, NY, was diagnosed with Marfan syndrome at the age of 4 when her mother noticed she was looking down at her hands a lot. At an eye doctor appointment, they learned that the connective tissue in her eye was loose, leading her to additional medical evaluations. As a result, the …
Blog.marfan.orgMARFAN FOUNDATION ORG
Marfan Syndrome is primarily a disorder of the connective tissue in the human body – connective tissue being the cement that holds the body in place. Every organ in the body possesses connective tissue. In fact, even blood is a connective tissue. The basic job of it is to bind parts of an organ, blood vessel or a joint together. What goes for a toss in people suffering from …
Marfanfoundation.orgMarfan syndrome - Symptoms and causes - Mayo Clinic
2022-05-05 · Marfan syndrome is an inherited disorder that affects connective tissue — the fibers that support and anchor your organs and other structures in your body. Marfan syndrome most commonly affects the heart, eyes, blood vessels and skeleton. People with Marfan syndrome are usually tall and thin with unusually long arms, legs, fingers and toes.
Mayoclinic.orgBEALS SYNDROME - The Marfan Foundation
Beals syndrome is a disorder of connective tissue. The syndrome was first explained by Beals and Hecht in 1971. Features of Beals syndrome are found throughout the body, especially in large joints. While there is no information on the exact prevalence of Beals syndrome, it is estimated that the incidence (number of new cases within a given time ...
Info.marfan.orgMarfan syndrome - Wikipedia
Marfan syndrome (MFS) is a rare multi-systemic genetic disorder that affects the connective tissue. Those with the condition tend to be tall and thin, with long arms, legs, fingers, and toes. They also typically have overly-flexible joints and scoliosis. The most serious complications involve the heart and aorta, with an increased risk of mitral valve prolapse and aortic aneurysm.
En.wikipedia.orgMarfan syndrome | Heart and Stroke Foundation
Marfan syndrome is an inherited connective tissue disorder. Connective tissue is like the glue that holds your cells together. It gives substance and support to your tendons, ligaments, blood vessels, cartilage, heart valves and many other structures. If you have Marfan syndrome, your connective tissue isn't normal so many of your body's ...
Heartandstroke.caMarfan Syndrome Symptoms & Treatment | UPMC
Because Marfan syndrome affects many structures of the body, complications can be wide-ranging and may include: Problems with bones and connective tissues. Nearsightedness. Heart and aortic problems, including: Heart valve problems. Aortic aneurysm. Aortic dissection. Early onset of common eye problems like macular degeneration.
Upmc.comMarfan Syndrome - Symptoms | NHLBI, NIH
2022-03-24 · Some symptoms of Marfan syndrome may be visible to others: A chest that sinks in or sticks out. A long head with deep-set eyes. A tall, thin body. Flat feet. Flexible joints. Long arms, legs, fingers, and toes. Other symptoms of Marfan syndrome are less obvious on the outside. Eye problems include blurred vision or trouble seeing things that ...
Nhlbi.nih.govThe Marfan Foundation - YouTube
The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and related disorders. We work tirelessly to advance research, serve as a resource for families and ...
Youtube.comSyndrome de Marfan - Symptômes, Traitements et Risques
Les symptômes liés au syndrome de Marfan varient beaucoup d’une personne à l’autre et peuvent apparaître à tout âge. Ils sont d’ordre cardiovasculaires, musculo-squelettiques ...
Passeportsante.netMarfan Syndrome: Symptoms, Causes & Treatment | Connective …
Marfan syndrome is an inherited disorder that affects the body’s connective tissue. Find out the many surprising ways this unusual condition can affect your health. Find out the many surprising ways this unusual condition can affect your health.<br>
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Archive.orgEhlers Danlos and Marfan Syndrome
2021-05-17 · Symptoms and indicators of Marfan Syndrome: The severity, starting time, and rate of progression of the signs and symptoms of Marfan syndrome vary greatly. Because connective tissue can be found all over the body, Marfan syndrome can affect a variety of organs and systems, causing problems in the heart, blood vessels, eyes, bones, and joints ...
Ehlersdanlosawareness.comSíndrome de Marfan - Síntomas y causas - Mayo Clinic
2022-05-05 · Marfan syndrome is an inherited disorder that affects connective tissue — the fibers that support and anchor your organs and other structures in your body. Marfan syndrome most commonly affects the heart, eyes, blood vessels and skeleton. People with Marfan syndrome are usually tall and thin with unusually long arms, legs, fingers and toes.
Mayoclinic.orgMarfan Syndrome: Diagnosis, Treatment, and Steps to Take
Living With Marfan Syndrome. Treating and living with Marfan syndrome, and its complications, is a lifelong process. However, advances in treatment make it possible for people with the disorder to have long, productive lives. The following tips can help you manage the disorder: Ask your doctors how often you should schedule follow-up visits ...
Niams.nih.govMarfan Syndrome - Causes | NHLBI, NIH
2022-03-24 · Marfan syndrome is a condition you are born with. It is caused by a mutations, or change, in a gene, called the fibrillin-1 (FBN1) gene.The FBN1 gene makes fibrillin-1, which is a protein that forms elastic fibers within connective tissue to support your bones, muscles, and organs.Fibrillin-1 also affects levels of another protein that helps control how you grow.
Nhlbi.nih.govSyndrome de Marfan — Wikipédia
Le syndrome de Marfan, ou maladie de Marfan, est une maladie génétique, à transmission autosomique dominante, des tissus conjonctifs.Elle atteint l'ensemble des organes du corps humain, avec des degrés très variables dans ses manifestations cliniques. Les organes les plus touchés sont : l'œil, le squelette et le système cardio-vasculaire
Fr.wikipedia.orgMarfan syndrome - NHS
Marfan syndrome is a disorder of the body's connective tissues, a group of tissues that maintain the structure of the body and support internal organs and other tissues. Children usually inherit the disorder from one of their parents. Some people are only mildly affected by Marfan syndrome, while others develop more serious symptoms.
Nhs.uk
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