Domain Informations
Lgmd-info.org lookup results from http://whois.godaddy.com server:
- Domain created: 2015-02-09T22:41:17Z
- Domain updated: 2024-07-08T10:53:48Z
- Domain expires: 2026-02-09T22:41:17Z 1 Year, 94 Days left
- Website age: 9 Years, 271 Days
- Registrar Domain ID: efc8394871074d5295a309e87347263b-LROR
- Registrar Url: http://www.whois.godaddy.com
- Registrar WHOIS Server: http://whois.godaddy.com
- Registrar Abuse Contact Email: [email protected]
- Registrar Abuse Contact Phone: +1.4806242505
- Name server:
- elma.ns.cloudflare.com
- trey.ns.cloudflare.com
Network
- inetnum : 23.185.0.0 - 23.185.0.255
- name : PANTHEON-IP4
- handle : NET-23-185-0-0-1
- status : Direct Allocation
- created : 2016-07-21
- changed : 2018-03-15
- desc : https://pantheon.io/
Owner
- organization : Pantheon
- handle : PS-747
- address : Array,San Francisco,CA,94108,US
Technical support
- handle : PANTH3-ARIN
- name : Pantheon Abuse
- phone : +1-415-780-9765
- email : [email protected]
Abuse
- handle : PANTH3-ARIN
- name : Pantheon Abuse
- phone : +1-415-780-9765
- email : [email protected]
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Host Informations
- IP address: 23.185.0.1
- Location: United States
- Latitude: 37.751
- Longitude: -97.822
- Timezone: America/Chicago
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Websites Listing
We found Websites Listing below when search with lgmd-info.org on Search Engine
Contact - LGMD Awareness Foundation
Contact. For more information about LGMD Awareness Foundation, LGMD Awareness Day or the rare neuromuscular diseases known as limb-girdle muscular dystrophy (LGMD), please complete and submit the form below. Name *. First …
Lgmd-info.orgHome - LGMD Awareness Foundation
LGMD Awareness Foundation, Inc. is a 501(c)(3) non-profit advocacy organization dedicated to globally raising awareness of the rare neuromuscular conditions known as limb-girdle muscular dystrophy (LGMD). In collaboration with other …
Lgmd-info.orgAbout Us - LGMD Awareness Foundation
LGMD Awareness Foundation, Inc. is a 501(c)(3) non-profit advocacy organization dedicated to globally raising awareness of the rare neuromuscular diseases known as limb-girdle muscular dystrophy (LGMD). In collaboration with other LGMD …
Lgmd-info.orgLGMD-Info.org — The Information 'Hub' for the LGMD Community
Contact Us; DONATE; Volunteer to be Featured. Are you An Individual Living with Limb Girdle Muscular Dystrophy (LGMD)? A Researcher working to find a cure and treatment for LGMD? A Representative from an organization focused on LGMD? If so, please consider volunteering to be featured in an. dooley 01/28/2017 10/06/2019 Individuals with LGMD - Interviews, …
Lgmd-info.orgWhat is LGMD - LGMD Awareness Foundation - LGMD-Info.org
Contact; What is LGMD. Home / What is LGMD. PAGE OVERIEW. OVERVIEW | QUICK FACTS | DIAGNOSIS & TREATMENT | DAILY ACTIVITIES WITH LGMD. OVERVIEW . There are over 30 genetic sub-types (forms) of LGMD and all these rare muscular dystrophies cause weakness of the ’limb-girdle’ muscles — the muscles surrounding the shoulders and hips. The severity, …
Lgmd-info.orgState Contact List for Proclamations - LGMD-Info.org
Requests can be submitted via email to [email protected], via fax to 717-772-8284, or via mail to the Governor’s Correspondence Office, 508-E Main Capitol Building, Harrisburg, PA 17120. Contact the Governor’s Correspondence Office at 717-787-5825 if you have additional questions about your request.
Lgmd-info.orgDonate - LGMD Awareness Foundation - LGMD-Info.org
Contact; Donate. Home / Donate. Help support our efforts! Help support our efforts to globally raise awareness of limb-girdle muscular dystrophy (LGMD) and the individuals living with these rare diseases. Thank you so much for considering a tax-deductible contribution. Donations received on this site will go directly to advance our advocacy efforts. By increasing awareness …
Lgmd-info.orgOn-line LGMD Support Groups on Facebook: - LGMD-Info.org
LGMD Support Groups on Facebook: Social media has profoundly changed the way people with LGMD connect to others — around the corner and around the world. Thankfully, LGMD patients and their family members are now able to access peer support via the internet. No longer do individuals diagnosed with LGMD, family members and/or caregivers have ...
Lgmd-info.orgInformation Websites - LGMD2i Research Fund | LGMD2i ...
The information ‘hub’ for the LGMD community. https://lgmd-info.org. LGMD Awareness Day, Spotlight Interviews, Proclamations, LGMD Facts, Organizations, LGMD Resources… this is a great resource with very diverse information about LGMD in general. You must visit this site! The admin is Carol Abraham. NMD United. www.nmdunited.org
Lgmd2ifund.orgLgmd Awareness Foundation Inc - GuideStar Profile
Contact Information × . Contact. Email contact available with a Pro subscription. Fundraising Contact. Carol Abraham President / Founder. Fundraising contact phone: (262) 758-2526 [email protected] Physical Address. 638 Kennedy Dr . Twin Lakes, WI 53181 . Payment Address. 638 Kennedy Dr . Twin Lakes, WI 53181 . Donation Payable. Legal name of organization: LGMD …
Guidestar.orgLGMD-1D DNAJB6 Foundation - GuideStar Profile
Contact Information × . Contact. Email contact available with a Pro subscription. Fundraising Contact. Dr William Lowery Founder, Chairman of board. Fundraising contact phone: (510) 910-8100 [email protected] Physical Address. 15 Redondo Court . Alameda, CA 94501 . Payment Address. 15 Redondo Court . Alameda, CA 94501 . Donation Payable. Legal name of …
Guidestar.orgLgmd.info - WHOIS & Domain Info - DomainBigData
Lgmd.info is hosted in Scottsdale, Arizona, United States and is owned by Registration Private (Domains By Proxy Llc). lgmd.info was created on 2015-02-04. Website IP is 50.63.202.54
Domainbigdata.comTGDOC Newsletter - Summer 2021
In addition, we also have a further 21 Affiliate Registries for LGMD and 24 Affiliate Registries collecting data on Ultra-Rare NMDs. For more information about TGDOC Membership please visit our dedicated webpage which includes a FAQ document, and contact Helen Walker if you have any questions.
Treat-nmd.orgPangenia Center of Excellence - Limb-Girdle Muscular Dystrophy
Limb-girdle muscular dystrophy (LGMD) is a group of diseases characterized by progressive weakness and muscle atrophy mainly involving the shoulder girdle and the pelvic girdle, collectively called the limb girdle. LGMD has many subtypes with different causal genes. Signs, Symptoms and Progression. The common features of the LGMDs are the weakness and …
Panrare.comResources | LimbGirdle
The limb-girdle muscular dystrophy community is inspiring and supportive. There are many helpful resources and organizations to support families living with LGMD. Here are just a few to get you started. Sarepta does not endorse nor is responsible for the content of any of the listed websites or the services provided by these organizations.
Limbgirdle.comLgmd-info.org Site - topsitessearch.com
Contact. For more information about LGMD Awareness Foundation, LGMD Awareness Day or the rare neuromuscular diseases known as limb-girdle muscular dystrophy (LGMD), please complete and submit the form below. Name *. First … Lgmd-info.org. Home - LGMD Awareness Foundation. LGMD Awareness Foundation, Inc. is a 501(c)(3) non-profit advocacy …
Topsitessearch.comLimb-girdle muscular dystrophy - rarediseases.info.nih.gov
2015-12-17 · Some registries collect contact information while others collect more detailed medical information. Learn more about registries. Registries for Limb-girdle muscular dystrophy: International LGMD2D Patient Registry Organizations Organizations Listen. Support and advocacy groups can help you connect with other patients and families, and they can provide …
Rarediseases.info.nih.govMyriad Women's Health
LGMD-Info.org. The LGMD-Info.org group organizes Limb Girdle Muscular Dystrophy Awareness Day and aims to increase awareness of the condition globally. Muscular Dystrophy Canada. The mission of Muscular Dystrophy Canada is to provide resources and support to those afflicted with neuromuscular disorders.
Myriadwomenshealth.comLimb-Girdle Muscular Dystrophies - NORD (National ...
Moore SA, Shilling CJ, Westra S, et al. Limb-girdle muscular dystrophy in the United States. J Neuropathol Exp Neurol. 2006;65:995-1003. Straub V, Bushby K. The childhood limb-girdle muscular dystrophies. Semin Pediatr Neurol. 2006;13:104-14. Nigro V. Molecular bases of autosomal recessive limb-girdle muscular dystrophy. Acta Myol. 2003;22:35-42.
Rarediseases.orgNew gene therapy addresses primary cellular deficit ...
1 day ago · Children's National Hospital experts developed a new pre-clinical gene therapy for a rare disorder, known as limb-girdle muscular dystrophy (LGMD) 2B, that addresses the primary cellular deficit ...
News-medical.net
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