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Hlh-registry.org lookup results from https://isp.cronon.net/whois-abfrage/ server:
- Domain created: 2014-09-09T07:26:06Z
- Domain updated: 2024-10-24T07:26:24Z
- Domain expires: 2025-09-09T07:26:06Z 0 Years, 249 Days left
- Website age: 10 Years, 116 Days
- Registrar Domain ID: d1e7fd96ee8548c6b1f3986e05c2dd87-LROR
- Registrar Url: http://www.cronon.net
- Registrar WHOIS Server: https://isp.cronon.net/whois-abfrage/
- Registrar Abuse Contact Email: [email protected]
- Registrar Abuse Contact Phone: +49.303980241
- Name server:
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Host Informations
- IP address: 81.169.145.77
- Location: Berlin Germany
- Latitude: 52.5174
- Longitude: 13.3985
- Timezone: Europe/Berlin
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Websites Listing
We found Websites Listing below when search with hlh-registry.org on Search Engine
Histiocyte Society - HLH Registry
Furthermore, the HLH Registry can improve the network of physicians collaborating in HLH and provide the framework for future clinical trials. The HLH Registry is a database implemented as a collaborative project of the HS and ESID in collaboration with the Inborn Errors Working Party (IEWP) of the European Bone Marrow Transplantation Group (EBMT) but is not limited to …
Histiocytesociety.orgINTO-HLH Registry | Sobi North America
The INTO-HLH Registry is a patient registry for people diagnosed with hemophagocytic lymphohistiocytosis (HLH) in North America. This is a collaborative effort with Cincinnati Children's Hospital Medical Centre (CCHMC), Texas Children’s Hospital, the North American Consortium for Histiocytosis (NACHO), and Sobi North America as the industry ...
Sobi-northamerica.comSobi announces launch of the INTO-HLH Registry, a disease …
INTO-HLH Registry serves as the first in-depth disease registry for the HLH medical and patient community in North America Sobi announces launch of the INTO-HLH Registry, a disease registry for patients with Hemophagocytic Lymphohistiocytosis (HLH) | Sobi
Sobi.comHistiocyte Society - Home
The Histiocyte Society, a nonprofit organization, is a group of more than 200 physicians and scientists from around the world committed to improving the lives of patients with histiocytic disorders by conducting clinical and laboratory research into the causes and treatment of this disease. To advance knowledge about and improve outcomes for ...
Histiocytesociety.wildapricot.orgHLH Registry | Universitätsklinikum Freiburg
Print out documents for HLH-diagnostic and –registry inclusion (see below) and fill in; Please send together with patient blood samples (2-3 ml serum plus 10 -15 ml EDTA blood; for infants and young children smaller volumes are acceptable) plus ca. 10 patient hairs plus 10 -15 ml EDTA blood of a healthy control to Medical Center - University of Freiburg – CCI Advanced …
Uniklinik-freiburg.deHLH Registry | Universitätsklinikum Freiburg
Print out documents for HLH-diagnostic and –registry inclusion (see below) and fill in. Please send together with patient blood samples (2-3 ml serum plus 10 -15 ml EDTA blood; for infants and young children smaller volumes are acceptable) plus ca. 10 patient hairs plus 10 -15 ml EDTA blood of a healthy control to Medical Center - University ...
Uniklinik-freiburg.dePathophysiology and epidemiology of hemophagocytic …
2015-12-05 · The Swedish national registry provides the a rigorous estimate the incidence of primary HLH with 1.5 cases/million live births in Sweden 2007-2011, up slightly from 1.2 cases/million in previous studies (1987-1996, 1997-2006). 45 In North America, frequency of specific gene defects varies significantly with ethnicity/race. 4 Genetic heterogeneity, presence …
Ashpublications.orgConnect with an expert | Suspect pHLH
The INTO-HLH Registry is a patient registry for people diagnosed with hemophagocytic lymphohistiocytosis (HLH) in North America. This is a collaborative effort with Cincinnati Children’s Hospital Medical Centre (CCHMC), Texas Children’s Hospital, the North American Consortium for Histiocytosis (NACHO), and Sobi North America as the industry sponsor. The …
Suspectphlh.comSobi Announces Launch of the INTO-HLH Registry, a Disease
2022-06-28 · The INTO-HLH Registry is designed to define the natural history of HLH, including the full diagnostic and treatment journey that patients with HLH experience. The registry also aims to provide ...
Globenewswire.comHLH registr protocol V1 20151213 - skion.nl
HLH Registry Protocol, Version 1.0, 13.12.2015 page 8 of 17 1 Introduction 1.1 Background and Scientific Rationale Hemophagocytic lymphohistiocytosis (HLH) is a rare life-threatening condition of severe hyperinflammation. HLH is not a single disease, but a clinical syndrome that may develop on the basis of a variety of underlying conditions leading to the same characteristic …
Skion.nlHistiocyte Society - HLH Steering Committee
HLH Registry. IRHDR. Previous HS Trials. Non-HS Studies. Knowledge Center. Webinars. 2021/2022 Webinars. December 2021 Webinar. February 2022 Webinar. April 2022 Webinar. May 2021 Speaker Series. April 2021 Speaker Series. March 2021 Speaker Series. February 2021 Speaker Series. January 2021 Speaker Series. September 2020 Speaker Series . June …
Histiocytesociety.orgSobi Announces Launch Of The INTO-HLH Registry, A Disease Re...
2022-06-28 · The INTO-HLH Registry is designed to define the natural history of HLH, including the full diagnostic and treatment journey that patients with HLH experience. The registry also aims to provide ...
Menafn.comHistiocyte Society - LCH Steering Committee
HLH Steering Committee. Rare Steering Committee. Financial Information. Membership. Benefits of Membership. Membership Application. Annual Meetings. Stockholm 2022. Archived Meetings. Virtual 2021. Memphis 2019. Clinical Studies. LCH-IV. HLH Registry. IRHDR. Previous HS Trials. Non-HS Studies. Knowledge Center. Webinars. 2021/2022 Webinars. December 2021 …
Histiocytesociety.orgHlh-registry.org - traffic-ranking & ähnlichkeits - xranks.com
Hlh-registry.org is ranked number 10M in the world and links to network IP address 81.169.145.77. Looks like hlh-registry.org is safe and legit. …
Offize.psychology48.comSobi Announces Launch of the INTO-HLH Registry, a Disease …
2022-06-28 · The INTO-HLH Registry Steering Committee will oversee management of the registry and use of data, and a team from Cincinnati Children’s will oversee abstraction of patients’ medical records, as well as overall project management for the registry. “As part of our commitment to the HLH community, we are pleased to support INTO-HLH, the first …
Apnews.comHLH, INC. | Georgia Company Directory
HLH, INC. was registered on Apr 11 2001 as a domestic profit corporation type with the address 3645 GA HWY. 11, MONROE, GA, 30656, USA. The company id for this entity is 0117650. There are 3 director records in this entity. The agent name for this entity is: HUBERT L. HARRIS, JR.. The entity's status is Dissolved now.
Georgiacompanyregistry.comHlh-registry.org - classement du trafic et similaires - xranks.com
Hlh-registry.org is ranked number 10M in the world and links to network IP address 81.169.145.77. Looks like hlh-registry.org is safe and legit.
Offize.psychology48.comHlh-registry.org - de clasificación y los similares del tráfico ...
Hlh-registry.org is ranked number 10M in the world and links to network IP address 81.169.145.77. Looks like hlh-registry.org is safe and legit.
Offize.psychology48.comHLH COMPANY, LLC | Georgia Company Directory
HLH COMPANY, LLC was registered on Oct 16 2013 as a name reservation type with the address NONE. The company id for this entity is 13456502. The entity's status is Expired now. Hlh Company, Llc has been operating for 8 years 9 months, and 3 days since it registered. ...
Georgiacompanyregistry.comHlh-registry.org - traffic ranking & similars - xranks.com
Hlh-registry.org is ranked number 10M in the world and links to network IP address 81.169.145.77. Looks like hlh-registry.org is safe and legit.
Offize.psychology48.com
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