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- Domain created: 2000-11-23T08:49:06Z
- Domain updated: 2024-10-10T10:00:00Z
- Domain expires: 2025-11-23T08:49:06Z 1 Year, 41 Days left
- Website age: 23 Years, 323 Days
- Registrar Domain ID: 2b23d73f963e4405aa9e2c2a6f27a9f0-LROR
- Registrar Url: http://www.gandi.net
- Registrar WHOIS Server: http://whois.gandi.net
- Registrar Abuse Contact Email: [email protected]
- Registrar Abuse Contact Phone: +33.170377661
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Host Informations
- IP address: 89.185.148.84
- Location: Nenagh Ireland
- Latitude: 52.8619
- Longitude: -8.1967
- Timezone: Europe/Dublin
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Email address with eurordis.org
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Websites Listing
We found Websites Listing below when search with eurordis.org on Search Engine
Contact - EURORDIS Open Academy
If you need help using the Open Academy website, fill out the form below or contact the team at [email protected] and we’ll get back to you as soon as possible. Becoming a Partner or a Faculty member . Interested in becoming an Open Academy Partner or a Faculty member? Email us at [email protected] and we’ll tell you more. Your experience. Have a …
Openacademy.eurordis.orgEURORDIS - The Voice of Rare Disease Patients in Europe
E-mail: [email protected]. www.rdi.ie. Avril Daly was elected to the EURORDIS Board of Directors in 2009, and has been Vice-President of EURORDIS since 2012. She is CEO of Retina International the global patient-led umbrella group dedicated to the promotion of research into Retinitis Pigmentosa (RP), Usher Syndrome, Macular Degeneration and allied …
Eurordis.orgEurordis - Email Addres & Phone Number - Lusha
EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over 800 rare disease patient organisations from more than 70 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe. By connecting patients, families and patient groups, as well as by bringing together all stakeholders and mobilising the rare disease …
Lusha.comContact - EURODIS
Other request. For anything from business enquiries about our services to general questions about EURODIS, please send an email to [email protected].
Eurodis.comEURORDIS - The Voice of Rare Disease Patients in Europe
EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of 956 rare disease patient organisations from 73 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe. By connecting patients, families and patient groups, as well as by bringing together all stakeholders and mobilising the rare disease community, …
Eurordis.orgEURORDIS - The Voice of Rare Disease Patients in Europe
2021-12-17 · The voice of rare disease patients in Europe The international voice of people living with rare diseases Bringing together patients, families and experts to share experiences in a moderated multi-language forum. The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that …
Eurordis.orgEURORDIS - World Duchenne
EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 910 rare disease patient organisations in 72 countries. Together they are the voice of 30 million people affected by rare diseases throughout Europe. EURORDIS’ mission is to build a strong pan-European community of patient organisations and people living with rare diseases, to be their …
Worldduchenne.orgFind out all about attneding the EURORDIS Black Pearl ...
The EURORDIS Black Pearl Awards are an opportunity for companies to: Learn about major achievements and advances in the rare disease community; Help build awareness of the said achievements and positive changes; Network with and gain visibility among European and global stakeholders of the rare disease cause in a neutral setting; Support programmes that benefit …
Blackpearl.eurordis.orgHome - EURODIS
Welcome to EURODIS, one of Europe’s leading combi-freight networks.. Discover the EURODIS network with its wide range of available distribution products and services throughout Europe.
Eurodis.comEURORDIS- Rare Diseases Europe - NORD (National ...
EURORDIS- Rare Diseases Europe, is a voluntary organization that is dedicated to improving the quality of life of all those affected by rare disorders. Its purpose is to encourage research and development of promising therapeutic options for the treatment of rare diseases; to insure the best possible health care throughout Europe and the European Union for those affected by rare …
Rarediseases.orgEURORDIS-Rare Diseases Europe and ECHAlliance announce ...
2018-11-29 · For further information please contact Denis Costello, EURORDIS, [email protected], or Brian O’Connor, ECHAlliance, [email protected]. About Rare Diseases Europe EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over 800 rare disease patient organisations from more than 60 countries that work together to …
Thedigitalhealthsociety.com2021 Awardees - EURORDIS Black Pearl Awards
The EURORDIS Member Award 2021 goes to AKU Society to recognize their 17 years of advocacy and research in the rare disease field, which led to groundbreaking achievements in the rare disease community. Among the organisation's many projects deserving recognition, we would like to highlight particularly the outstanding results of DevelopAKUre and Patient-Centric …
Blackpearl.eurordis.orgEurordis Survey: Healthcare Experience Worse for Rare ...
2021-02-18 · Eurordis also recommended that healthcare services ensure that rare disease patients have access to multidisciplinary, networked, and high-quality, specialized care. This includes facilitating timely access to in-person and virtual cross-border expert advice when such expertise is not available in the patients’ home country, and promoting knowledge sharing …
Xlhnewstoday.comAparito wins prestigious EURORDIS award for health ...
2022-01-19 · Aparito is the proud recipient of the EURORDIS Company Award for Health Technology at the 2022 EURORDIS Black Pearl Awards . This award is great recognition from the rare disease community to acknowledge that Aparito makes a difference in the rare disease space. Aparito has dedicated the last seven years to creating change in the clinical trial ...
Aparito.comEurordis, Paris - CYLEX France
Contactez ☎ Eurordis Paris, 96 rue Didot avec ⌚ horaires d'ouverture, itinéraire, email et coordonnées. Laissez votre ☆ avis
Cylex-locale.frHome - EURODIS
Il Network EURODIS collega 36 Paesi attraverso consolidati partner locali che beneficiano di un forte know-how del proprio territorio di appartenenza e del mercato logistico nazionale.
Eurodis.comEURORDIS Award Contest Welcomes Photos of Life With Rare ...
2020-12-18 · The annual EURORDIS Photo Award contest is inviting people worldwide to visually express what life is like with a rare disease, while raising awareness through their work of these disorders.. Submissions for next year’s awards are open until Jan. 31. The competition is organized by France-based EURODIS, an alliance of rare disease patient organizations, and …
Xlhnewstoday.comHome - EURODIS
Logistik über alle Grenzen hinweg. Willkommen bei EURODIS, einem führenden Kombifracht Netzwerk in Europa . Entdecken Sie das EURODIS Netzwerk mit einer großen Auswahl an Produkten und Services für Ihre Sendungen innerhalb Europas. Produkte & Services. Sendungsverfolgung anhand des Barcode.
Eurodis.comUnity and EU-wide Efforts Focus of Online Rare Disease Meet
2020-05-18 · Eurordis is a nonprofit alliance of 900 rare-disease patient organizations from 72 countries that work jointly to improve the lives of Europeans with rare diseases. Orphanet provides high-quality information and data on rare diseases. With its 40-nation network, Orphanet helps to orient patients and doctors to relevant expert resources in Europe and beyond. The …
Charcot-marie-toothnews.comHome - EURODIS
Vous découvrirez qu’une collaboration avec le réseau EURODIS vous apportera de nombreux avantages pour vos envois B2B et B2C. Vos envois seront transportés par des membres de notre réseau disposant d’une vaste expérience régionale sur la base de normes de qualité spécifiques
Eurodis.com
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