Clovessyndrome.org


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  • Domain created: 2009-10-31T16:31:37Z
  • Domain updated: 2024-09-11T00:39:13Z
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  • handle : NET-172-64-0-0-1
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  • created : 2010-07-09
  • changed : 2021-07-01
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Host Informations

  • IP address: 172.67.165.83
  • Location: United States
  • Latitude: 37.751
  • Longitude: -97.822
  • Timezone: America/Chicago

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Email address with clovessyndrome.org

Found 1 emails of this domain
1. [email protected]

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Websites Listing

We found Websites Listing below when search with clovessyndrome.org on Search Engine

Cloves Syndrome Community - Cloves Syndrome …

[email protected] CLOVES Syndrome Community PO BOX 406 West Kennebunk, ME 04094 (833) 425-6837. Facebook; Twitter; Instagram; Email; Subscribe. This website is not intended for medical diagnostic use or as a replacement for professional medical consultation. No information or images on this site may be used or reproduced without the written consent of CLOVES …

Clovessyndrome.org

Contact Registry - Cloves Syndrome Community

[email protected] CLOVES Syndrome Community PO BOX 406 West Kennebunk, ME 04094 (833) 425-6837. Facebook; Twitter; Instagram; Email; Subscribe. This website is not intended for medical diagnostic use or as a replacement for professional medical consultation. No information or images on this site may be used or reproduced without the written consent of CLOVES …

Clovessyndrome.org

About - Cloves Syndrome Community

Email; Subscribe. This website is not intended for medical diagnostic use or as a replacement for professional medical consultation. No information or images on this site may be used or reproduced without the written consent of CLOVES Syndrome Community. CLOVES Syndrome Community is a 501c3 not for profit organization. All donations are tax exempt. ...

Clovessyndrome.org

Welcome - Cloves Syndrome Community

[email protected] CLOVES Syndrome Community PO BOX 406 West Kennebunk, ME 04094 (833) 425-6837. Facebook; Twitter; Instagram; Email; Subscribe. This website is not intended for medical diagnostic use or as a replacement for professional medical consultation. No information or images on this site may be used or reproduced without the written consent of CLOVES …

Clovessyndrome.org

Resources & Support - Cloves Syndrome Community

2021-08-04  · [email protected] CLOVES Syndrome Community PO BOX 406 West Kennebunk, ME 04094 (833) 425-6837. Facebook; Twitter; Instagram; Email; Subscribe. This website is not intended for medical diagnostic use or as a replacement for professional medical consultation. No information or images on this site may be used or reproduced without the written consent of …

Clovessyndrome.org

What is CLOVES? - Cloves Syndrome Community

CLOVES Syndrome is an overgrowth syndrome with complex vascular anomalies. CLOVES stands for Congenital, Lipomatous Overgrowth, Vascular malformations, Epidermal nevi and Scoliosis/Skeletal/Spinal anomalies. The syndrome was described independently by Saap et al. and Alomari [1,2]. The syndrome shows no inheritance among families of affected patients. …

Clovessyndrome.org

CLOVES Syndrome Community | Kindful

Contact Information Email. [email protected]. Phone. 2072812130. Address Partner Signup West Kennebunk ME 04094 United States

Clovessyndrome.kindful.com

February 12, 2021 - clovessyndrome.org

This email will contain some images that you are welcome to use in your fundraising pages. 1 - We have used the MightyCause Fundraising platform as one way to help us to achieve specific fundraising goals. We like MightyCause because you are able to tell a story about why our organization is important to you. MightyCause is a user-friendly platform that you can easily …

Clovessyndrome.org

Clovessyndrome.org Site

2021-12-29  · About - Cloves Syndrome Community. Email; Subscribe. This website is not intended for medical diagnostic use or as a replacement for professional medical consultation. No information or images on this site may be used or reproduced without the written consent of CLOVES Syndrome Community. CLOVES Syndrome Community is a 501c3 not for profit …

Topsitessearch.com

CLOVES Syndrome Community | Kindful

When you register for the Service we will request some personal information such as your name and email address, and information about your organization such as the name of your organization, Tax ID, mailing address, and tax designation. Furthermore, if you are opening a merchant account, Kindful may also obtain information about you from third party sources, …

Clovessyndrome.kindful.com

CLOVES Syndrome Community - the40percent.org

2021-06-17  · The vision of CLOVES Syndrome Community (CSC) is an improved quality of life for those living with CLOVES syndrome, an ultra-rare, progressive, multi-system disease. Their mission is to support, educate, empower and improve the lives of those affected by CLOVES syndrome. CLOVES Syndrome Community aims to accelerate treatment options, increase the …

The40percent.org

CLOVES Syndrome Community | Kindful

Email address * Email Email. password * Password

Clovessyndrome.kindful.com

CLOVES syndrome - Wikipedia

CLOVES syndrome is an extremely rare overgrowth syndrome with complex vascular anomalies. CLOVES syndrome affects people with various symptoms, ranging from mild fatty soft-tissue tumors to vascular malformations encompassing the spine or internal organs. CLOVES syndrome is closely linked to other overgrowth disorders like proteus syndrome, Klippel–Trénaunay …

En.wikipedia.org

CLOVES Syndrome Community - YouTube

CLOVES Syndrome Community is part of the Chan Zuckerberg Initiative’s Rare As One Network— a group of 30 patient-led organizations that are driving progress in the fight against rare diseases ...

Youtube.com

CLOVES Syndrome Community - NORD (National Organization ...

The mission of CLOVES Syndrome Community (CSC) is to support, educate, empower and improve the lives of those affected by CLOVES syndrome. Its vision is to have an improved quality of life for people with CLOVES syndrome. The goals of CSC include providing information and resources to educate others about CLOVES syndrome; fostering and promoting a …

Rarediseases.org

View Job Posting - nonprofitmaine.ps.membersuite.com

All applications and communication about this position should be sent via email to [email protected]. No phone inquiries, please. To apply, candidates must submit the following to the above email by Monday October 11, 2021: A …

Nonprofitmaine.ps.membersuite.com

CLOVES Syndrome Community

CLOVES Syndrome Community supports, educates, empowers and improves the lives of those affected by CLOVES Syndrome with a vision to improve the quality of life for people with CLOVES Syndrome. × . Please Remove Adblock. Adverts are the main source of Revenue for DoveMed. Please remove adblock to help us create the best medical content found on the Internet. ×. …

Dovemed.com

Cloves Syndrome Community - Overview, News & Competitors ...

CLOVES Syndrome Community supports, educates, empowers and improves the lives of those affected by CLOVES Syndrome. We believe that when patients and their fami... Read More. Headquarters: PO Box 406, West Kennebunk, Maine, 04094, United States. Phone: (833) 425-6837. Website: www.clovessyndrome.org . Employees: 27. Is this data correct? View contact …

Zoominfo.com

CLOVES SYNDROME COMMUNITY | LinkedIn

CLOVES SYNDROME COMMUNITY | 76 followers on LinkedIn. Support, Research and Education | CLOVES Syndrome Community supports, educates, empowers and improves the lives of those affected by CLOVES Syndrome. Vision: An improved quality of life for people with CLOVES Syndrome CLOVES Syndrome stands for Congenital, Lipomatous, Overgrowth, …

Ca.linkedin.com

CLOVES Syndrome Community - Idealist

The vision of CLOVES Syndrome Community is an improved quality of life for those living with CLOVES syndrome. Our mission is to support, educate, empower and improve the lives of those affected by CLOVES syndrome. CLOVES Syndrome Community does this by cultivating a thriving patient community, convening medical and family conferences, publishing books for children, …

Idealist.org


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